Table 1.

Case study summary of a young girl with SCD from Ghana

AspectDetails
Early life and diagnosis Diagnosed at age 2; frequent fevers, pain, and swelling; family unaware of SCD 
Stigma and community reaction Viewed as cursed or bewitched; family faced social exclusion and whispers in the community 
Pain management struggles Basic pain relief (paracetamol) often insufficient; mixed responses from health care providers 
Social and educational impact Bullying and isolation in school; academic performance affected; found solace in reading 
Psychological impact Feelings of worthlessness and depression; parents felt guilt and emotional strain 
Support and advocacy Received support from SCFG and SCD Association of Ghana; improved community attitudes 
Future aspirations Determined to become a teacher; inspired to advocate for inclusive environments for children with SCD 
AspectDetails
Early life and diagnosis Diagnosed at age 2; frequent fevers, pain, and swelling; family unaware of SCD 
Stigma and community reaction Viewed as cursed or bewitched; family faced social exclusion and whispers in the community 
Pain management struggles Basic pain relief (paracetamol) often insufficient; mixed responses from health care providers 
Social and educational impact Bullying and isolation in school; academic performance affected; found solace in reading 
Psychological impact Feelings of worthlessness and depression; parents felt guilt and emotional strain 
Support and advocacy Received support from SCFG and SCD Association of Ghana; improved community attitudes 
Future aspirations Determined to become a teacher; inspired to advocate for inclusive environments for children with SCD 

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