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Audra Boscoe
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Journal Articles

Qualitative interviews exploring the patient experience of fatigue in individuals with sickle cell disease (SCD), thalassemia, and pyruvate kinase (PK) deficiency

Free
Biree Andemariam, NinaMaria Badalamenti, Rae Blaylark, Audra Boscoe, Lily Cannon, Ralph Colasanti, Janie Davis, Daniel Ford, Rachael Grace, Holly John, Charles Jonassaint, Sarah Knight, Kevin Kuo, Laurice Levine, Clarisse Lobo, Jake Macey, Susan Morris, Parija Patel, Tamara Schryver, Nirmish Shah, Sujit Sheth, Cassandra Trimnell, Jack Wakefield, Alejandra Watson, Jill Welle, Teonna Woolford, Raffaella Colombatti
Journal: Blood
Blood (2025) 146 (Supplement 1): 7971.
https://doi.org/10.1182/blood-2025-7971
Published: 2025
Journal Articles

Disease monitoring and management among pediatric patients with pyruvate kinase deficiency: Real-world practices from pyruvate kinase deficiency registries prior to 2024 international expert guidelines

Free
Sule Unal, Stefan W. Eber, Andreas Glenthoej, Bertil Glader, Eduard Van Beers, Rachael Grace, Joan-Lluis Vives Corrons, Hitoshi Kanno, Kevin Kuo, Paola Bianchi, Bryan McGee, Yan (Flame) Yan, Audra Boscoe, Junlong Li, Janet Ford, Carl Lander
Journal: Blood
Blood (2025) 146 (Supplement 1): 4454.
https://doi.org/10.1182/blood-2025-4454
Published: 2025
Journal Articles

Clinical Monitoring Practices Among Adult Patients with Pyruvate Kinase Deficiency Who Have Never Been Transfused

Free
Stefan W Eber, Andreas Glenthøj, Bertil Glader, Dagmar Pospisilova, Eduard J. van Beers, Rachael F. Grace, Joan-Lluis Vives Corrons, Hitoshi Kanno, Kevin H.M. Kuo, Paola Bianchi, Audra Boscoe, Bryan McGee, Yan Yan, Junlong Li, Janet H. Ford, Carl Lander
Journal: Blood
Blood (2024) 144 (Supplement 1): 3696.
https://doi.org/10.1182/blood-2024-200739
Published: 2024
Journal Articles

The Launch of Two Sub-Studies of the Peak Registry, a Global, Longitudinal Study of Pyruvate Kinase Deficiency

Free
Carl Lander, Rachael F. Grace, Eduard J. van Beers, Joan-Lluis Vives Corrons, Bert Glader, Kevin H.M. Kuo, Andreas Glenthøj, Dagmar Pospíšilová, D. Mark Layton, Audra Boscoe, Stephanie Smith, Bryan McGee, Paola Bianchi
Journal: Blood
Blood (2022) 140 (Supplement 1): 11041–11042.
https://doi.org/10.1182/blood-2022-163079
Published: 2022
Journal Articles

Validation of the Pyruvate Kinase Deficiency Diary (PKDD): A Patient-Reported Outcome Measure for Pyruvate Kinase (PK) Deficiency

Free
Shayna Egan, Erin Zagadailov, Adrian Jewett, Junlong Li, Feng Tai, Audra Boscoe, David A. Andrae
Journal: Blood
Blood (2021) 138 (Supplement 1): 4144.
https://doi.org/10.1182/blood-2021-148278
Published: 2021
Journal Articles

Validation of the Pyruvate Kinase Deficiency Impact Assessment (PKDIA): A Patient-Reported Outcome Measure for Pyruvate Kinase (PK) Deficiency

Free
Shayna Egan, Erin Zagadailov, Adrian Jewett, Junlong Li, Feng Tai, Audra Boscoe, David A. Andrae
Journal: Blood
Blood (2021) 138 (Supplement 1): 4145.
https://doi.org/10.1182/blood-2021-148364
Published: 2021
Journal Articles

Baseline Characteristics of Patients in Peak: A Global, Longitudinal Registry of Patients with Pyruvate Kinase Deficiency

Free
Rachael F. Grace, MD, Audra Boscoe, PhD, Chris Bowden, MD, Bertil Glader, MD PhD, Hitoshi Kanno, MDPhD, D. Mark Layton, MB BS, Eduard van Beers, MD PhD, Joan-Lluis Vives Corrons, MD PhD, Yan Yan, MS, Paola Bianchi, BSc, PhD
Journal: Blood
Blood (2020) 136 (Supplement 1): 39–40.
https://doi.org/10.1182/blood-2020-136634
Published: 2020
Journal Articles

Mortality Among Veterans with a Diagnosis of Pyruvate Kinase (PK) Deficiency: A Real-World Study Using US Veterans Health Administration Data

Free
Erin Zagadailov, PharmD, Audra Boscoe, PhD, Viviana Garcia-Horton, PhD, Sherry Shi, MSc, Shuqian Liu, MD, Lizheng Shi, PhD, Dendy Macaulay, PhD
Journal: Blood
Blood (2020) 136 (Supplement 1): 24–25.
https://doi.org/10.1182/blood-2020-136693
Published: 2020
Journal Articles

Treatment Patterns and Healthcare Resource Utilization in Patients with Relapsed/Refractory Acute Myeloid Leukemia and a Subset with IDH1-Mutation: A United States Medical Chart Review Study

Free
James D. Griffin, MD, Mike Storm, MSc, Ken Wilhelm, MD, Audra Boscoe, PhD, Dendy Macaulay, PhD, Zheng-Yi Zhou, PhD, Elizabeth Faust, MBA/MPH, Claudia Cheung, MS
Journal: Blood
Blood (2018) 132 (Supplement 1): 5864.
https://doi.org/10.1182/blood-2018-99-116495
Published: 2018